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Frequently Asked Questions

Use the following links to view frequently asked questions on each topic:

 

Questions About the Down Syndrome Association of Atlanta

Questions About Down Syndrome

 




Questions About the Down Syndrome Association of Atlanta

Q:

Does DSAA have regular meetings for members?


A:


DSAA has general meetings throughout the year, usually tied to an educational program or social activity. It is difficult to find a central, convenient location in Atlanta to hold regular meetings. We encourage you to contact a parent networking group near you to meet with other parents regularly.


Q:


How can DSAA help new parents?


A:


DSAA has a wonderful packet of basic information for new parents of a child with Down syndrome. It includes a new parent booklet, called “See the Potential”, information about Georgia’s Babies Can’t Wait Program, contact information for other helpful organizations, a membership form, and a copy of the poem, “Welcome to Holland”, by Emily Perl Kingsley. Upon return of the membership form, DSAA will also send the book, Babies with Down Syndrome, A New Parent’s Guide, by Karen Stray-Gunderson.


Q:


What services does DSAA provide?


A:


DSAA is not actually a “service provider”, but an organization of parents who provide information and sponsor events to be helpful to parents in metro-Atlanta. We try to answer your questions or refer you to someone who can help you with your concerns.


Questions About Down Syndrome

Q:

Did I do anything wrong to cause my baby to be born with Down syndrome?


A:


Nothing you did or thought caused your child to have Down syndrome. All individuals who have Down syndrome were born with extra chromosome material in their cells. This is a result of an error in cell division, in either the egg or sperm, prior to conception or very soon afterward. At this time it is not know why the extra genetic material causes Down syndrome.


Q:


Do I need a “special pediatrician” to care for my child with Down syndrome?


A:


Your pediatrician for routine care does not need to be a “Down syndrome specialist”. It is more important for you to choose a doctor you are comfortable with and whom you believe will treat your child like any other.


Q:


What should I be doing to help my baby?


A:


Soon after birth, early intervention specialists including physical, occupational, and speech therapists can guide you in how to promote your baby’s progress. Talk to other parents who live near you. They are often the best source of information for people and programs that can help maximize your child’s potential.


Q:


How do I explain Down syndrome to my other children?


A:


We recommend a terrific book, We’ll Paint the Octopus Red, by Stephanie Stuve-Bodeen for pre-school and early elementary-aged children. The story is easy to understand and there is a question and answer section in the back that addresses many concerns that a young child may have.

 
     
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