National Down Syndrome Organizations

National Down Syndrome Congress (NDSC)
NDSC is located in Atlanta but is a national organization with board members from all across the country. They have a great website, a fantastic national public awareness campaign ("We're More Alike Than Different"), publish a newsletter and other informational materials, and hold a national convention for families and self-advocates every summer. The NDSC convention in 2010 will be in Orlando, Florida in July 2010.

For more information, go to http://www.ndsccenter.org

National Down Syndrome Society (NDSS)
NDSS is located in New York, NY and has a National Policy Center in Washington, DC. NDSS has a variety of education, research, and advocacy programs and oversees Buddy Walks across the country.

For more information, go to http://www.ndss.org

National Association for Down Syndrome (NADS)
NADS is located in Wilmette, Illinois and serves the greater Chicago area.

For more information, go to http://www.nads.org

Affiliates in Action (AIA)
AIA is an organization of affiliate members (local Down syndrome associations) that has developed a Steering Committee and is working on the development of a Down Syndrome Trade Association. The group holds conferences for Executive Directors and Board Members and is devoted to sharing best practices. The next conference will be in Kansas City, Missouri in March 2010.

For more information, go to http://www.dsaia.org

Association for Children with Down Syndrome
For more information, go to http://www.acds.org

Down Syndrome Parents Network
For more information, go to http://www.dspn.org

DS: For New Parents
For more information, go to http://www.downsyn.com

UNO MAS! Down Syndrome Online
For more information, go to http://www.unomas21.com

Riverbend DS Group
For more information, go to http://www.riverbendds.org

There are a number of organizations that offer membership and resources to individuals with Down syndrome as well as other disabilities and those who care about them. This listing is offered as a resource but doesn't include every organization that exists and we cannot guarantee accuracy of every entry. As is our policy, DSAA does not promote any therapy, treatment, institution, professional system, organization, etc. Use this list with discretion.